Howdy!

Well it's been almost 2 weeks since my last update. It's been busy to say the least. With a packed schedule and F's 3 hour naps, there isn't much time for anything. It seems like all we do is therapy, pain management and rest, therapy, rest and oh the occasional grocery store run.

F is such a trooper!! She proves to be such a strong girl every single day. However, she seems to be having issues with her right leg/hip now. Is it from therapy or is it that the Hypotonia is so significant that the intense work in PT is causing her to ache in places she never knew could ache?

She is waking up a lot at night (the nights she had PT during the day). She usually cries about boo boos and asks to be snuggled and have her legs rubbed. There are days that she won't even put a foot on the floor and just wants to be held/carried/snuggled. It sucks. There isn't anything I can do to help other than Motrin and other generic ways to help. I wish I could take it away but I keep thinking one more day like this is one day closer to being stronger.

Alas, today we are back at it at 430 this afternoon. She loves her therapist. He's amazing with her. He tries to make it fun but he challenged her a lot which is what we need. I'm still looking for a good Occupational Therapist in the area. It's tough to find one close to home instead of heading into the nearest major city 40 minutes away. We do what we have to do I guess.


Here's my buggy working on her fitness!!